Get your own funeral before yourself, know what's the reason behind it

Medical science has found a cure for most major diseases. Scientists also created a vaccine of global epidemic such as Corona within a year. But even today, there are many rare diseases on this earth, which do not even have the answer with medical science. One such rare disease proseia was called in the film ‘Dad’ with Amitabh Bachchan. But today we are going to tell you about another rare disease, whose victim is an 18 -year -old son from Boston, England. The name of this boy is Rice Williams. Believe me, if you know the state of this boy, your soul will tremble. Rice was born with a rare skin disease called epidermolisis Bullosa or butterfly disease. Because of this disease, the rice peel becomes so thin that, even after touching the corner of the paper, blood begins to come out of it. Not only that, lumps can also come out in the body with minor scratches. He lives every day with painful wounds all over his body. However, doctors said they only have a few days left to live. In such a situation, Rice planned his funeral. Let me tell you that when he was a child, his parents were told that he would not even be able to survive for ten years. When he turns 13, he plans his own funeral so he would be ready when he came close to death. In 18 he turned 18, despite all obstacles, but a few weeks later he became sepsis and pneumonia. In this condition he was taken to hospital on November 4. The doctors there said that they could do nothing now and that the treatment of rice was stopped. After being removed from life care, he was sent to the hospital and now lives on painkillers. The doctors told the sad family that he had a few days or weeks to live. He may not even see Christmas. Rice’s mother, Tanya Murce, said the doctors said she was so delicate that she could not be put in the breathing channel. However, my boy is very strong. When I told him, he said he was sad about it, but I would try to handle it. Rice’s mother, Tanya, said she planned her funeral when she was only 13 years old. I got very emotional when they told me. I want to be strong for her younger sister, but sometimes I’m afraid. So I don’t sleep at night. According to Tanya, he could never cook, he could not cycle or even clean his teeth. If he does such a thing, he will harm himself. However, people who do not know rice are not untouched by ugly remarks. Tanya said many people on the road call him a demon. Butterfly disease is called epidermolisis bullosa in medical science. Although this rare disease occurs in children at birth, but many people are engulfed even after birth. 1 in 50 thousand children suffer from this. 40 percent of children suffering from this disease die within five years. There are three phases of this disease. First eb simplex, where blisters are formed in the top layer of the skin. It affects 70 percent of patients. Second dystrophic ebb, where blisters in the top layer are formed below the skin surface, affects 25 percent of patients. And third – connection, where blisters are formed in the lower layers of the skin, are usually the most serious form of the condition. Share this story -tags