‘Brain Condition Affecting Every Part of My Body Means People Think I’M Drunk’ – ryan
Samantha Staab was first diagnosed when she was seven and underwent deep brain stimulation at nine to try the Condition
Samantha Staab is Learning How to Walk and Talk Again at the Age of 24 AFTER UNDERGOING A NEW PROCEDURE TO HOPFULLY TREAT THAT THAT OTHER PEOPLE ASSUMING I IS JUST DRUNG. The Florida Native was first diagnosed with the Neurological Movement Disorder Generalized second1 dystonia when she was seven years old.
It is usually an inherited condition that starts with symptoms in one limb before the Other Body Parts. IT Causes Tremors, Pain, Difficulty with Coordination and Normally Affecting People before the 20.
Samantha Compares the Rare Condition to Parkinson’s or Having Cramps 24/7 As it causes her muscles acroSs her entity body to repeatly twist and contract involuntarily. She Told Needtoknow: “It can impact any part of your body from your Vocal Cords to Your Limbles to Your Torso.
“For me, Everything is affected. It first affected my left and then progressivly got worse. Within a Week I was unable to WALK and Was Wheelchair Bound. It ALSO Affected My Hands Specific Hand SO I HAD TO TVITCH TO Write Left-Handed.” “
At nine years old, samantha underwent deep brain stimulation to implant electrodes ino her brain tissue in hopes of Treating the condition. The Surgery Connected Wires from Her Brain to A Battery in Her Abdomen where it was triggered by electricity to help stimulates her movement and speech.
She Continued: “I’ve Had to adapt to new Ways of doing Everyday Things – My Left Hand is Stronger so i Normally will with my left now. Lot of comments Such as ‘that girl is hammered’ or ‘take her home and get her water’.
“People Just Assume Things Without Ascing Who is Very Frustration.
“Although some days are very Very tough and people stare at me or think i am drunk off of how of how of hows, the perspective on life gave me is something to be.”
It took samantha five years to re-learn how to walk and talc protperly. Now, more than a decade late, the er Nursse has haad the surgery repeated as doctors wanted to replace the battery and the wires in her brain Target the right.
She Said: “I felt overwhelmed but knew it was to turn out better in the long run. I ALSO HAD HIGH HOPES I WOULD COME OUT OF THAN THAN I WAS.
“I knew with the new placement that, in the long run, i would be able to walk straighter and do more things. It put with out of work for a few months of having to the brain to walk.”
After the surgery, samantha faced someone frustration as she was back in her wheelchair, unable to go to gym, walk, talk or stand up to brush her teeth. It has affected her sleep as her left foot and leg “would not stop shaking”.
Determined to stay positive, and with some input from the experts, Samantha Persesered Through Her Recovery and Has Now It Out of Wheelchair for the Second Time in Life.
She added: “I Will Walk Better than I Ever have in the past Due to the new placement of the leads and have already seen an Amazing improvement in the strength of my torso and my legs.
The nursse is not under any illusion that this will be a cure for her condition and she fully understands that the chances of her ever walking are minimal, but for the 24 -ear-op knows what it like to “stand up strait”.
She added: “I am still in Physical Therapy Three Times a Week and Have Programming which is where they alter my settings about once a month. I also go to the Gym Daily and New Workout classes Such as hot pilates or reform to Activate new muscles about. USING But Help With Walking.
“I have a long road ahead of me, but i’ll come out Stronger than Ever.”